MACPAD
48 Mann St
Cheektowaga NY 14206
Phone:  716-725-3212

Research Funding

MACPAD's Research Funding

The beginning...

Long time MACPAD members and supporters, Michael and Kathleen Gorman and daughter Victoria were saddened by loss in their family. In 2000, Kathy's father, Harry E. Bowers Jr. passed away. It was one of his fondest wishes to see a treatment or a cure for PKU. At the time of his death, family members requested that in lieu of flowers, donations be made to MACPAD. As the donations arrived, we noted that most individuals included a note about Mr. Bowers' love for his granddaughter, Victoria, and his hope that someday she would not be restricted to a low protein diet.

In honor of Harry E. Bowers, Jr., MACPAD developed a research fund with monies collected going to PKU research.  In February 2002, MACPAD awarded a $1000 research grant to Dr. Holmes Morton at the Clinic for Special Children in Strasburg, PA to be used to study PKU.

The fund grows...

2002 Research Fund Distribution

In 2002, MACPAD held its first Walk-a-thon for PKU Research in Washington Township, NJ. 
We were able to award $26,700 in research grants to two researchers in 2002.

2003 Research Fund Distribution

 In 2003, MACPAD held its second Walk-a-thon for PKU Research in Washington Township, NJ and also received research fund donations in memory of Mrs. Adele Mellwig. We were able to award $20,500 in research grants to two researchers in 2003.

2004 Research Fund Distribution

In 2004, MACPAD held its third Walk-a-thon for PKU Research in Washington Township, NJ and also received research fund donations in memory of Dr. James Budzak. We were able to award $44,000 in research grants to two researchers in 2004.

2005 Research Fund Distribution

In 2005, MACPAD held its fourth Walk-a-thon for PKU Research in Washington Township, NJ, its first Walk for PKU Research in Derby, CT, and received research fund donations in memory of Bernie Grieco. We were able to award $45,110 in research grants to one researcher in 2005.

2006 Research Fund Distribution

In 2006, MACPAD held its fifth Walkathon for PKU Research in Washington Township New Jersey, its second walk for PKU Research in Derby, CT, and its first walk for PKU Research in OH at Miami Whitewater Forest, and its first walk for PKU Research at North Park near Pittsburgh, PA. In addition, MACPAD received funds from Bill Rahe's Ride Across America for PKU Research, from a walk held in Alabama, an event held in South Carolina, and an event held in Iowa. Memorial donations were received by MACPAD in memory of Dale Boehlefeld, Dennis Blouch, Jack Jordan, James J. Morgan, Austin Tyler Patin, and Jeanne Shea. MACPAD also received money for PKU Research from the sale of PKU Awareness Month Tee Shirts, Golf Shirts and "Support PKU Research" wristbands. Because of all of this, we were able to award $150,000 in research grants to two researchers in 2006.

2007 Research Fund Distribution

In 2007, MACPAD held its sixth Walkathon for PKU Research in Washington Township, NJ, its second walks for PKU research in Ohio at Miami Whitewater Forest and near Pittsburgh, PA at North Park. We also held an event called "Mania at Miele" in northern NJ. In addition, MACPAD received funds from Iowa PKU Foundation, Michigan PKU Association and an event held in Montana. Memorial donations were received by MACPAD in memory of Jack Doebley, Juliette Coddington, and I. Marie Tingling. Donations were also received in honor of Mick Sheard's graduation from high school, Zola Simonelli's first birthday and Pam Mansfield's husband's 50th birthday.MACPAD also received some research funds from the sale of "Support PKU Research" wristbands and PKU Awareness Month Tee Shirts. Because of all of this MACPAD was able to award $143,000 in research grants to three researchers in 2007.

 

 2008 Research Fund Distribution

In 2008, MACPAD held its seventh Walkathon for PKU research in Washington Township, NJ, its third walks for PKU research in Ohio at Miami Whitewater Forest, and near Pittsburgh, PA at North Park. We also held a fund raiser in Northern New Jersey, a Golf Outing in Delaware, and a walk in Newtown, CT. MACPAD received funds for PKU research from events in Louisiana, Texas, and Montana. Memorial donations were received by MACPAD in memory of Juliette Coddington and Thomas Kasee. MACPAD also received some funds from the sale of "PKU Awareness" tee shirts and "Support PKU Research" wristbands. Because of all of this, MACPAD was able to award $91,000 in research grants to one PKU researcher in 2008.

 

2009 Research Fund Distribution

In 2009, MACPAD held its fourth walks for PKU research in Ohio at Miami Whitewater Forest and in Pennsylvania at North Park near Pittsburgh. We also held our first walk for PKU research at Hubbard Valley County Park in Northern Ohio. We also held a fund raiser in Northern New Jersey, a golf outing in Delaware, a dinner in Brooklyn, NY,  and an Easter Egg Hunt in West Chester, PA to raise money for PKU research. We received memorial donations in memory of Victoria Borden, William Campbell, Mary Siconolfi, and Eleanor Tirimacco. We also received  a bequest from the estate of Beverly Kuntz. We received donations in honor of Jennifer Barron, Lenora Donatiello and Gianna Uber. MACPAD also received some funds from the sale of "PKU Awareness" tee shirts and "Support PKU Research" wristbands. Because of all of this, MACPAD was able to donate $55,200 to the National PKU Alliance PKU Research Fund in 2009.

 

2010 Research Fund Distribution

In 2010, MACPAD held its fifth walk for PKU research at Miami Whitewater Forset near Cincinnati, OH and its second walk for PKU research at Hubbard Valley County Park in Northern OH. We held our third golf outing at Rock Manor Golf Course in Wilmington, DE. ,  our first 5K Run and Walk in Northern NJ, an Easter Egg hunt in Eastern PA, and a garage sale fund raiser in Western PA all to raise money for PKU research. We received donations for PKU research in honor of Amie Renninger's wedding, honoring Evan Patterson, honoring Sidney and Michelle Sinewe, honoring Daniel Upschulte, honoring Rebecca Thal, and in memory of Arthur McDougall. MACPAD also received some funds from the sale of "PKU Awareness" tee shirts and "Support PKU Research" wristbands. Because of all of this, MACPAD was able to donate $75,000 to the National PKU Alliance PKU Research Fund in 2010

 

MACPAD now contributes to research via NPKUA.  See NPKUA research page for more details.