PKU Support Groups
Every effort is made to keep this information current. If you find inaccurate information, please notify webmaster@MACPAD.org.
Arizona
Arizona PKU and Allied Disorders Network
Michele and Dustin Dial
3820 E. Sailboat Pl
Tucson, AZ 85739
Email PKUsupport@msn.com
California
California Coalition for PKU and Allied Disorders
Mary Mercurio, President
PMB 117
9785 Baseline Road
Phone 909-466-4688
Email pkusocal@keyway.net
Children’s PKU Network
Cindy Neptune
3306 Bumann Rd
Encinitas, CA 92024
858-756-0079
858-756-1059 Fax
Email pkunetwork@aol.com
Delaware
Delaware Chapter of Mid-Atlantic Connection for PKU and Allied Disorders, Inc
Noelle Bamonte, chairman
P.O. Box 6086
Lancaster, PA 17607
Georgia
Georgia PKU Connect
3300 Hamilton Mill Road
Suite 102-120
Buford, GA 30519
Illinois
PKU Organization of Illinois
Lisa Irgang, President
1926 Farnam Court
Schaumberg, IL
Email 1mi799@sbcglobal.net
Indiana
Indiana PKU and Allied Disorders Association
David Spiech, President
454 Westbrook Circle
Noblesville, IN 46062
Email fundraising@indianapku.org
Iowa
Iowa PKU Foundation
Blythe Stanfel
2170 NW 138th
Clive, IA 50325
Email bstanfel@gmail.com
Maryland
Maryland Alliance of PKU Families Inc.
1699 Springmount Drive
Eldersburg, MD 21784
Phone 410-795-2091
Email RKerr1699@gmail.com
Michigan
Michigan PKU & Associated Disorders, Inc.
Sandy LaPrad, Founder
3062 E Lois
Midland, MI 48640
Email smlaprad@yahoo.com
Mid-Atlantic Region
Mid-Atlantic Connection for PKU and Allied Disorders, Inc.
P.O. Box 6086
Lancaster, Pa 17603
Phone 717-872-7546
Fax 717-872-7546
Email info@macpad.org
Midwest
Midwest PKU Organization
529 NW Highcliffe Drive
Lees Summit, MO 64081
Email pvannorman@KC.RR.COM
Minnesota
Minnesota PKU Foundation
A Place of Our Own
1397 Arden Oaks Drive
Saint Paul, MN 55112
Missouri
Unified to Support Metabolic Disorders
Cara Shouse
National
Michaux Family Foundation
St Helena, CA
National PKU Alliance
Christine Brown, Executive Director
P.O. Box 501
Tomahawk, WI 54487
715-437-0477
Fax- 715-453-7670
www.npkua.org
PKU Adult/Teen
Sarah Foster
Email pkuadult@aol.com
New England
New England Connection for PKU and Allied Disorders
5 Jones Lane
E Sandwich, MA 02537
New Jersey
Northern New Jersey Chapter of Mid-Atlantic Connection for PKU and Allied Disorders, Inc
Jill Ambrogio, chairman
P.O. Box 6086
Lancaster, PA 17607
Southern New Jersey Chapter of Mid-Atlantic Connection for PKU and Allied Disorders,Inc.
P.O. Box 6086
Lancaster, PA 17607
New York
M.D.S.G.S.C ---INHERITED METABOLIC DISORDERS SUPPORT GROUP OF
AnnMarie DiGeorgio
email pkubegone@optonline.net
Western New York PKU Association
Jim Ranney, President
3541 Trails End Lane
Wheatfield, NY 14120
Upstate New York Chapter of Mid-Atlantic Connection for PKU and Allied Disorders, Inc.
Lori Commisso, Chairman
P.O. Box 6086
Lancaster, PA 17607
Ohio
Ohio Chapter of The Mid-Atlantic Connection for PKU and Allied Disorders, Inc.
Michelle Cribbet, chairman
P.O.Box 6086
Lancaster, PA 17607
Michelle.Cribbet@spectracf.com
Oklahoma
Oklahoma PKU Support Group
Theresa Beverage, President
Rt 1 Box 154-1
Asher, OK 74826
Oregon
Oregon Support Group
Jennifer Jones
Pennsylvania
Western PA Chapter of Mid-Atlantic Connection for PKU and Allied Disorders, Inc.
Erica Burkarth, Chairman
P.O. Box 6086
Lancaster, PA 17607
Eastern PA Chapter of Mid-Atlantic Connection for PKU ad Allied Disorders, Inc.
Kim DeCosmo, Chairman
P.O. Box 6086
Lancaster, PA. 17607
South Carolina
Lowcountry PKU Support Group
10477 Grays Highway
Ridgeland, SC 29936
Tennessee
Tennessee PKU Foundation
Kellye McDowell, President
5468 Sabin Court
Murfreesboro, TN 37128
Texas
North Texas PKU Association
Karen Courtney, President
Email karenc35@aol.com
Virginia
Ryan's PKU Foundation
2127 Kingsley Lane
Chesapeake, VA 23323
757-558-1980
Wisconsin
PKU And Allied Disorders of Wisconsin (PADOW)
Stephanie Stremer, President
6285 Schumacher Road
Waunakee, WI 53597
Email se.stremer@hosp.wisc.edu
Wyoming
Wyomedcampaign.org
Kenneth Allen, President
P.O. Box 343
Meeteetse, Wy 82433
307-272-1883
Additional Contacts:
The PKU Association of N.S.W, Inc,
PKU Association of NSW Committee from 2009
President:- Andrew McDonald
Email: aimcdonald@westpac.com.au
Secretary:- Lucia Tilocca
Email ltilocca@testpro.com.au
Treasurer:- Anthony Morris
Email chameleondec@optusnet.com.au
Public Officer:- Debbie Colyer
Email debbieco@tpg.com.au
Editor:- Jolanda Jarman
Email thejarmies@optusnet.com.au
www.pkuworldlink.org
The simple aim of this website is to help link people with PKU worldwide.
http://health.groups.yahoo.com/group/maternalpku/ A support group for Maternal PKU, Stephanie Coleman CPKU.
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Watch the slide show above-see who you find! Updated 1-15-10.| 2009 Annual PKU Picnic |
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