MACPAD
48 Mann St
Cheektowaga NY 14206
Phone:  716-725-3212

PKU Support Groups

Every effort is made to keep this information current. If you find inaccurate information, please notify webmaster@MACPAD.org.

 

 United States

Arizona

 

Arizona PKU and Allied Disorders Network

Michele and Dustin Dial

3820 E. Sailboat Pl

Tucson, AZ  85739

Email PKUsupport@msn.com

 

California

California Coalition for PKU and Allied Disorders

Mary Mercurio, President

PMB 117

9785 Baseline Road

Phone 909-466-4688

Email pkusocal@keyway.net

www.pkuparents.org

 

Children's PKU Network

Cindy Neptune
3306 Bumann Rd
Encinitas, CA 92024
858-756-0079
858-756-1059 Fax

Email pkunetwork@aol.com

www.pkunetwork.org

Delaware

 

Delaware Chapter of Mid-Atlantic Connection for PKU and Allied Disorders, Inc

Noelle Bamonte, chairman

P.O. Box 6086

Lancaster, PA 17607

mnbamonte@comcast.net

info@MACPAD.org

Georgia

Georgia PKU Connect

3300 Hamilton Mill Road

Suite 102-120

Buford, GA 30519

www.GeorgiaPKU.org.

Illinois

PKU Organization of Illinois

Lisa Irgang, President

1926 Farnam Court

Schaumberg, IL

Email 1mi799@sbcglobal.net

www.pkuil.org

Indiana

 

 Indiana PKU and Allied Disorders Association

 David Spiech, President

454 Westbrook Circle

Noblesville, IN  46062

Email fundraising@indianapku.org

www.indianapku.org

Iowa

 

 Iowa PKU Foundation

Blythe Stanfel

2170 NW 138th

Clive, IA 50325

Email bstanfel@gmail.com

www.iowapkufoundation.com

Maryland

 

 Maryland Alliance of PKU Families Inc.

1699 Springmount Drive

Eldersburg, MD  21784

Phone 410-795-2091

Email RKerr1699@gmail.com 

www.mapkuf.org

 

 

Michigan

Michigan PKU & Associated Disorders, Inc.

Sandy LaPrad, Founder

3062 E Lois

Midland, MI  48640

Email smlaprad@yahoo.com

www.michigan-pku.org

Mid-Atlantic Region

 Mid-Atlantic Connection for PKU and Allied Disorders, Inc.

P.O. Box 6086

Lancaster, Pa 17603

Phone 717-872-7546

Fax 717-872-7546

Email info@macpad.org

www.macpad.org

Midwest

 

Midwest PKU Organization

529 NW Highcliffe Drive
Lees Summit, MO  64081

Email pvannorman@KC.RR.COM

Minnesota

 

Minnesota PKU Foundation

A Place of Our Own

1397 Arden Oaks Drive

Saint Paul, MN 55112

Missouri

Unified to Support Metabolic Disorders

Cara Shouse

cara.usmd@gmail.com

 

National

 

Michaux Family Foundation

St Helena, CA

dick@michauxfamily.com

 

National PKU Alliance

Christine Brown, Executive Director

P.O. Box 501

Tomahawk, WI  54487

715-437-0477

Fax- 715-453-7670

www.npkua.org

 

PKU Adult/Teen

Sarah Foster

Email pkuadult@aol.com

New England

 

New England Connection for PKU and Allied Disorders

5 Jones Lane

E Sandwich, MA 02537

www.NecPad.org

New Jersey

Northern New Jersey Chapter of Mid-Atlantic Connection for PKU and Allied Disorders, Inc

Jill Ambrogio, chairman

P.O. Box 6086

Lancaster, PA 17607

info@macpad.org

jillambrogio@hotmail.com

 

Southern New Jersey Chapter of Mid-Atlantic Connection for PKU and Allied Disorders,Inc.

P.O. Box 6086

Lancaster, PA 17607

info@macpad.org

New York

M.D.S.G.S.C ---INHERITED METABOLIC DISORDERS SUPPORT GROUP OF SUFFOLKCOUNTY

AnnMarie DiGeogio

80 Picket Lane

Centereach,NY11720

email pkubegone@optonline.net

 

Western New York PKU Association

Jim Ranney, President

3541 Trails End Lane

Wheatfield, NY 14120

jranney@wned.org

 

 

Upstate New York Chapter of Mid-Atlantic Connection for PKU and Allied Disorders, Inc.

Lori Commisso, Chairman

P.O. Box 6086

Lancaster, PA 17607

info@macpad.org

commisso5@gmail.com

 

Ohio

 

Ohio Chapter of The Mid-Atlantic Connection for PKU and Allied Disorders, Inc.

Michelle Cribbet, chairman

P.O.Box 6086

Lancaster, PA 17607

Michelle.Cribbet@spectracf.com

info@macpad.org

Oklahoma

Oklahoma PKU Support Group

Theresa Beverage, President

Rt 1 Box 154-1

Asher, OK  74826

gtjbev@msn.com

Oregon 

Oregon Support Group

Jennifer Jones

jltjones@hotmail.com

Pennsylvania

Western PA Chapter of Mid-Atlantic Connection for PKU and Allied Disorders, Inc.

TBD, Chairman

P.O. Box 6086

Lancaster, PA 17607

info@macpad.org

 

Eastern PA Chapter of Mid-Atlantic Connection for PKU ad Allied Disorders, Inc.

Kim DeCosmo, Chairman

P.O. Box 6086

Lancaster, PA. 17607

mailto:info@MACPAD.org

kimdecosmo@hotmail.com

 

Central PA Chapter of Mid-Atlantic Connection for PKU and Allied Disorders, Inc.

Kristen Upschulte, Chairman

P.O. Box 6086

Lancaster, PA 17607

info@macpad.org

kwolfe3@yahoo.com

 

South Carolina

 

Lowcountry PKU Support Group

10477 Grays Highway

Ridgeland, SC 29936

Tennessee

Tennessee PKU Foundation

Kellye McDowell, President

5468 Sabin Court

Murfreesboro, TN  37128

www.tennesseepku.org

Texas

 

North Texas PKU Association

Karen Courtney, President

Email karenc35@aol.com

Virginia

Ryan's PKU Foundation

2127 Kingsley Lane

Chesapeake, VA 23323

757-558-1980

mike_oanh@verizon.net

 

Wisconsin

 

PKU And Allied Disorders of Wisconsin (PADOW)

Stephanie Stremer, President

6285 Schumacher Road

Waunakee, WI  53597

 www.padow.org

Email se.stremer@hosp.wisc.edu

Wyoming

 

Wyomedcampaign.org

Kenneth Allen, President

P.O. Box 343

Meeteetse, Wy  82433

307-272-1883

http://www.wyomedcampaign.org

 

 

  

Additional Contacts: 

 Australia

 

The PKU Association of N.S.W, Inc, Sidney, Australia

PKU Association of NSW Committee from 2009

President:- Andrew McDonald

Email: aimcdonald@westpac.com.au

Secretary:-  Lucia Tilocca

Email ltilocca@testpro.com.au

Treasurer:-  Anthony Morris

Email chameleondec@optusnet.com.au

Public Officer:-  Debbie Colyer

Email debbieco@tpg.com.au

Editor:-  Jolanda Jarman

Email thejarmies@optusnet.com.au

 www.pkuworldlink.org  

The simple aim of this website is to help link people with PKU worldwide.

 

 

 http://health.groups.yahoo.com/group/maternalpku/  A support group for Maternal PKU, Stephanie Coleman CPKU.